Hi all, dont know where this fits so posting here. English is not my first language so sorry for any mistak.
Right now my babies are 4 month and this problem is going on from the second month so i think its not some temporary problem.they are still hydrated, has wet diapers active and achieving milestone.
little bit of background i am first time mom of twin daughters via ivf, getting to pregnant was struggle of 6 years with lots of chemical pregnancy, 1 ectopic pregnancy,1 miscarriage and d&c, many ivf cycles and this was our last embroy last chance, and it happened i got pregnant, had terrible pregnancy with hypertension,gestational diabetes, continues vomiting and nausea for entire pregnancy lots of injection for daily and then kidney started leaking protein so had c section at 36 week plus 2 day, it was smooth process, babies weight was low 1.8kg and 2 kg but had no breathing issue, some low sugar but it resolved after feeding and no nicu, was discharged after 1 day, everything was fine well until it wasn't
first they were so small could not latch on breast, tried so many times after that started to pump and give them with spoon because everyone was against bottle, but they never cried for feed it was us who used to wake them which was taking like 30 min just to wake them with every trick possible in world than spoon feed, it was impossible task and they were still not latching on breast. I had worst postpartum depression which was ugly while pumping i will have suicidal thoughts and every worst possible scenario because i was in this vicious cycle of pumping waking both babies up feeding changing diaper making them sleep and again starting over so milk supply got low and for my sanity i stopped it and started formulamilk and i am not ashamed of it, well after that got Phillips avent natural Response bottle they were no use shifted to some local brand babies were feeding fine and happy at 4 week they reched to 120 and 90 ml and than everything got down hill.
Now my 1 twin at the 5 week started to take slowly, reduced milk intake which was like ok she is still taking, twin 2 was on and off. Then they completely stopped, try to spoon feed but no use ever tried dropper which was taking forever, went to lactation consultant said food aversion so stop force feed, change formula, bottle. did everything no use and now we are back to Philips bottle with flow 4 because babies are not taking old bottle.
Now my twin who loved to feed avoids bottle while awake like they will not take bottle in her mounth, only dream feed which is just 60 ml because she gets tired, went to so many pediatrician that i lost count every one shamed me for formula and said all problem is because of bottle ok well thanks for help, now i am afraid of going to any doctor
So now at 4 month my both twins are hardly having 400 to 450 ml milk daily and no doctor has any clue everyone is saying reflux and both are on reflux medicine.
After arguing with husband for 3 months finally went to dentist who specializes in posterior tounge tie and she said restrictions at tounge and type 3 lip tie, i know it gets overdiagnosed but from where i am no one belives in tounge tie and posterior tounge tie does not exist.
So if it is not tounge tie and kids are perfectly healthy and on reflux medicine should not they feed at ease why am i fighting with them for last 3 month, at 4 month should not it get easier.no one is helping me, me and my babies are measurable, they are hungry but cant do anything we are still waking up at every 2 hour just to feed them at night because at day time they are mostly awake.
So the symptoms i see in them are
1) only feeds in sleep and still struggles to make a latch
2) moves tounge randomly like does not know what to do and gets frustrated and does not try
3) cant take more than 60 to 45 ml in sleep too gets tired
4) always has milky tounge(not oral thrush doctor confirmed)
5) continuously clicking
6) upper lip tucked in and red
7) sometime use jaw to create pressure
8) takes 30 min to 60 min just for 60 ml milk to finish
9) noticed both has small, thick, white frenulum
10) easily gags
11) reflux
12) gas
13) milk coming out from corner of mounth
14) always tens when feeding like trying so hard to keep that latch
16) tounge stick out sometimes but not all the way
What we tried for 3 month
1) did not push to feed while awake.
2) tried to stop dream feed so they take while awake but it was no use so continue dream feed
3) changed formula for while but no use so back to original formula
4) changed bottle
5) tried flow 5 teat its no use tried slow flow no use
6) pls dont suggest dr brown baby does not like that and gag on that
7) tried to increase time gap to 4 hour still same result will take 30 ml to 40 and stop
8) tried to give only when baby cries, only take 45 ml and got tired and will stop
So what is it, is it tounge and lip tie, reflux, allergy or my babies are never hungry or i am doing something wrong(well according to every doctor and lc thats the case)
I am not active at all on any social media and if i am posting here u can assume how desperate i am
Please help me