This post is going to address a wide variety of vaginal issues that I've experienced over the past 2 years. I wanted to write this for any women that going to gynecologists who minimize their symptoms and do not listen; women that know there is something wrong but have no one who listens. I hear you.
This all started a bit over 2 1/2 years ago. I remember having symptoms of a yeast infection, and I went to the drugstore to get some OTC miconazole cream to treat this suspected yeast infection. At this point, I had yeast infections prior, and knew that this was likely what was going on. I remember inserting this cream and it stung so bad. I read that this stinging was a side effect, something I found hard to believe because it was so uncomfortable. Either way, my symptoms didn't really resolve after this, and so I went to my school nurse who prescribed me oral antifungals. No test. I took these, but nothing.
Fast forward around 2-3 months later in May 2024, I got an ear infection and took antibiotics for this. On these antibiotics, I noticed my vaginal symptoms worsen, and over the course of this summer, my vaginal symptoms did not improve. When I came back to college, I went to the school nurse (again), who didn't test, and gave me advice about diet, water intake, sexual hygeine, etc. Of course, none of this helped. My symptoms did not improve.
Fast forward another two months in October 2024, my symptoms still had not subsided. I decided to finally go to a gynecologist. My appointment was with a nurse practitioner who, upon looking at my vagina, swabbed EXTERNALLY and sent the swab to the lab. Of course, the test results came back as nothing. The swab needed to be done INTERNALLY. Not knowing what I do now, I figured there was nothing I could really do about this so I tried to move on from my discomfort.
I decided to go to a different office in late November 2024, with a real gynecologist, who swabbed internally this time. My results came back as positive for BV and Yeast. I took metronidazole and fluconazole afterward (again). I remember that, for a few days, I actually felt normal. Until, I got a severe UTI 2 days after the fluconazole course ended. At 4:00 in the morning, I drove to the ER due to severe pain and did more swabs to see why it hurt so much. I did a wet prep and also tested for STDs, all were negative, though my wet prep did show a little bit of bacteria.
I went back to the gynecologist that prescribed me metronidazole and fluconazole, she swabbed me again and both were negative. But I was still experiencing symptoms. Along with my OCD, I started to become extremely defeated and helpless. I decided to go to another gynecologist, who tried to tell me to relax these "two muscles" at the base of the vaginal opening. I knew right then and there that he wouldn't help me. I asked about the weird discharge I was still experiencing and of course, nothing.
So, here was another semester of college that was plagued by vaginal discomfort. I kept doing research about my situation and ultimately came across two things that I had not yet tested for: Mycoplasma & Ureaplasma. I read that these were not included on standard STD panels, but that they could be causing the weird symptoms that I was experiencing. Despite going to several doctors, no one had brought this up ONCE.
By June 2025, I took myself to a LabCorp and ordered a Mycoplasma test for myself, it was negative. In July, I tested for Ureaplasma after emails with my doctor back home (I was staying at my college over this summer, as I had an internship). I urged him that my symptoms could be caused by this, and I think I knew deep down that this could be causing an imbalance in my microbiome, leading to recurrent BV and yeast.
Positive. I cried. I thought that after this treatment, my discomfort would finally subside. I was prescribed Azithromycin and Doxycicline (about a 3-week treatment), alongside with a heavy dose of fluconazole to take alongside it. After this three week period, my symptoms felt no better, but I figured my tissue was so chronically inflamed, that I would need to give it a few weeks, or possibly a few months to subside. At least, this was what I read.
By September 2025, it felt the same, and I was really alone in my journey at this point. I became depressed and constantly overwhelmed in my fight to solve my discomfort. I went to ANOTHER gynecologist, who tested me for everything (STDs, BV, Yeast (different strains), Ureaplasma, and Mycoplasma). All negative. According to him, I was all good. I understood that no doctors were helping me anymore, no one had the answers. I decided that I would just keep going, I had done all I could. Maybe my body just needed more time.
In October 2025, I went to visit my boyfriend who was studying abroad in London. My mental health was truly affected by my struggles, and I found it extremely difficult to let go and enjoy my trip, especially because I couldn't walk without discomfort. Despite this, I enjoyed my trip. Even though I was severely uncomfortable. December 2025, no improvement, but I felt helpless and again, maybe my body just needed more time.
My Spring semester of 2026 was when I started to feel truly hopeless. I had begun to obsessively check ChatGPT about my symptoms, constantly googling and reading on Reddit what could be wrong with me? Anyone may look at this from the outside and wonder this, but really, the medical community had failed me. I even had a gynecologist tell me at one point that my issue was that I wasn't staying with one gynecologist, and I wouldn't be able figure anything out if I kept hopping around (there's so much wrong with saying this, but I don't need to get into it).
I decided to see a urogynecologist. I had seen one the previous summer, but they did not help. They wanted to do a procedure in my bladder to check for interstitial cystitis, but I just knew this was not the problem. I knew my body, and I didn't want to waist time and money on a procedure that I knew would not help. The urogynecologist I saw in Spring 2026 may have been the worst doctor I had seen yet. I told her about my symptoms, showed her my test results from the past two years, to which she looked at and said, "these look great," despite me telling her about my discomfort. I had done an EVVY microbiome test which showed that I had essentially 0% disruptive bacteria, and according to her, this was the microbiome everyone should "strive for." She told me about interstitial cystitis, and I just sat there listening to her spiel. I knew more about it than her after all the research I had done. I had tried to stop drinking coffee, acidic foods, etc. She just told me I needed to do it for longer. I would have rather her said, "I don't know" than to give me a half-ass diagnosis.
In April, I went to another gynecologist. This time, I went to get my first pap smear. I still had symptoms, and told him about this. He suggested the same "diet" tirade I had heard countless times before, and also suggested a vinegar douche (wtf). I knew then I would not be going back to him. Alongside this, my pap smear came back as abnormal, I had LSIL. This sent me further down the pipeline of panic.
Upon my research of LSIL, I realized it was quite normal and that it would often subside on its own. It also would not typically cause symptoms like the ones I had. Eventually, I became less nervous about it and figured I would be ok. Still, my symptoms (burning with urination, externally white discharge, pelvic discomfort) were not subsiding. I called my gynecologist back home to prescribe me with internal hydrocortisone suppositories to see if this helped with internal inflammation. I had already tried external hydrocortisone, but this did nothing. I tried the internal suppositories for about a week and a half, and they did nothing. At this point, I feared nothing would work.
It was in Spring of 2026 that I also discovered what Cytolytic Vaginosis was. I read that it was a "controversial" diagnosis. I also had not been told what this was by any of the doctors I had seen, just like Ureaplasma. I looked back at my EVVY test, and noticed just how "good" my results were. With these results of a 100% protective score, I shouldn't be experiencing weird symptoms, right?
Wrong. I did a deep dive into Cytolytic Vaginosis, and read about how lactobacillus crispatus are often the dominant strain of lactobacillus to overgrow in this condition. With little microbiome diversity and a score of over 96% of these bacteria, I realized I was onto something. I had tried baking soda baths over the spring months, but they really did nothing. Over time, I realized I needed a more aggressive approach.
I spent weeks, if not months, debating if I should try the remedies I read about online for this suspected CV. If I tried them and they worked, I would finally feel relief. If I bit the bullet and they backfired, I would set myself back even further. I read tons on reddit and also companies like neuve, who published articles about CV. I wanted to know as much as I could before I tried either baking soda douches or suppositories.
I decided in May 2026 to try the douche. At this point, I had graduated college and moved into my new apartment. I'm sitting here in this apartment now. This douche slightly improved my symptoms – I finally peed once and it didn't burn. But surely, the symptoms quickly came back the next day. Maybe I needed more.
About 3 days ago now, I got some gelatin capsules and put about a tic-tac sized amount of baking soda in them. I was terrified that this would lead to BV or yeast, but honestly, I decided that it really couldn't get worse than what I was experiencing. I inserted the suppository, and the next morning, I already felt better. Did I finally find the cure?
I'm sitting here now, about 3 days into the suppository, and I do feel better. I think I actually found something that is helping. I'm going to keep monitoring my symptoms and may do another suppository if I think it is necessary. It is hard for me to believe that I may actually be done with this. If I finally am, I'll be greatful to move on from these struggles.
For the first time in a long time, I feel like I'm moving in the right direction. I don't know yet whether Cytolytic Vaginosis is certainly the answer, but after years of discomfort and dead ends, this is the first intervention that has noticeably improved my symptoms.
For anyone who may be going through something similiar, my story is just one of many to show that you are truly not alone in your struggles. My experience shows that doctors are often ill-informed and terrible advocates for their patients. These "experts" are often not experts. They are operating on limited knowledge, outdated assumptions, and, at times, a reluctance to listen when a patient knows something is wrong.
Too often, women are dismissed, misdiagnosed, or told their symptoms are impossible simply because their condition falls outside of what a provider has personally encountered. I spent years searching for answers, questioning myself, and feeling unheard. What ultimately helped me was trusting my own observations, continuing to ask questions, and refusing to accept inadequate explanations.
Women, trust your intuition, do your own research, and do not accept doctors who treat you as though you know nothing. Throughout medical history, women's pain, symptoms, and concerns have too often been dismissed, minimized, or misattributed. Sexism in medicine has left a lasting legacy that continues to affect how some women are heard and treated. You know your body better than anyone else, and you deserve healthcare providers who listen, take your concerns seriously, and work with you as a partner in your care.