So many times I’ve just wanted to have sex, I want to feel that close connection with somebody. I can feel it within me, how I want my partner to be in me. I want to feel the closest I can possibly be to someone. But I can’t.

And it hurts me. I know I can feel connected to someone and have other types of sex, I know it’s possible to have fun in other ways. But sometimes that just doesn’t do it for me, it feels boring and I find myself longing for more, for something deeper.

I’m so scared I’ll never be able to experience that. It saddens me to the bone. That’s what makes me feel most hopeless.

I don’t know if anyone else has experienced the same thing but if you have I’d appreciate some support.

7 years ago I had my first symptoms. So many doctors have been unhelpful, dismissive, uninformed or inexperienced. To the gyno who told me 'just learn to relax', fuck you in particular.

Today I called for a recurring yeast infection and the treatment not working and the new doctor wanted to see me. So I get my ass in there all defensive already, not expecting any help. Maybe a lecture or something. And she actually told me it does look unhealthy. And she tested for yeast. It was not yeast. It might or might not have been yeast the past 2 years. They could've tested that all along, it took a few minutes, a swab, a microsope and just the tiniest amount of effort goddamnit. I pick up my hormonecream for lichen sclerosis tomorrow. I am not expecting to have my sex life back, but maybe at least my symptoms can be managed.

I am not even feeling relieved or hopeful, just pure anger. Our medical system is luck based. The new doctor had done a specialty and thus knew what to look for. Otherwise I might've been none the wiser still.

Edit: So it is clobetasol I got prescribed. Those are hormones and in Dutch vernacular it's commonly referred to as 'hormoonzalf'. Which I translated literally to hormonecream and that is confusing. And considering you can put other hormones in creams, not a great word in Dutch to start with.

Just when I think sex might be okay, my body reminds me that it will never be enjoyable. Sex always ends in pain, disappointment, and grief.

The last time I tried penetration, not only was it painful, but I also tore for the first time.

When I recently tried oral, it quickly became painful, and caused my vulva to swell.

I'm pretty sure my type of vestibulodynia requires surgery, but I also experience full numbness on the inside, so i see no point in pursuing that avenue.

Every time I try to have sex in one way or another, I'm reminded of how broken I am. I've been dealing with this for 13 years, but the grief doesn't get any easier.

I thought that by trying to seek out help again, that I would find answers and treatments. The only thing I've figured out is a new diagnosis, but that's it.

For those of us with complex issues, there is no help.

I feel trapped in this body. I don't even remember what pleasurable sex feels like anymore.

Im so FURIOUS OMGGGGG!!!!!!!

I posted a picture of my vulva on obgyn to ask if it looks like i have lichen sclerose and men are sending me private messages to ask for more pictures and others asked me how is my sex life and tried to sexchat WTF?

IM IN SO MUCH PAIN TRYING TO FIGURE OUT WHATS WRONG WITH MY RAW PAINFUL VAGINA AND MEN HAVE THE AUDACITY TO DO WHATEVER THE FUCK THEIR SICK DEVILISH MIND TELL THEM TO

and now feel so weird about the picture that I posted the fact that there are other men looking at it in a dirty way disgust me.

I mean ok i am aware that since i posted my vagina anyone can see it and think however they want of it BUT THE AUDACITY TO TEXT ME PRIVATELY AND TELL ME THAT MY VULVA TURNS THEM ON IS JUST INSANE.

i am in so much pain I even had suicidal thoughts because of this condition and im trying to fix my relationship with my body as much as i can and what just happened made me feel so fucking weird.

This is the first time I experience something bad on reddit.

I prayed this guy face the worst disease he could ever imagine I cannot explain how much anger i am feeling right now it’s insane

I could use some support or something i feel so weird

I dont want to feel weirded out about my body because of a stranger online but i do:/

I love my body it is doing its best to get better and function everyday it does not deserve what im feeling.

I hate when I suggest something I feel is wrong with me, I asked to be tested and the doctor (gyno in my case) goes “no I don’t think that’s it”. Okay but what’s the harm in testing? I’m paying not you. It’s so frustrating. I really want my hormones tested because I’ve been so dry down there and it stings when I pee doesn’t hurt but stings on one side, I have no libido which has been an issue for a while on the pill even before this as I’m on birth control but don’t want to get off until I test my hormones. I noticed that I had even more of a decline in libido before I started having these issues. I’m wondering if the birth control has anything to do with it. Also the outside of my vulva is red and I just don’t know what to do. The only thing I’ve been able to get my gyno to do is a skin biopsy because my primary doctor pushed for it.

Hi flowers, I have vestibulodynia and have been struggling severly with it since october last year (2025).

My doctors prescribed me with steriod cream + sls free emollients back this January after MONTHS of absolute agony it felt like i finally had some sort of answer.

Unfortunately for me the relief was extremely short-lived if that, i previously quit my job due to how much this impacts my day-to-day life. I have now required supervision when showering, I'm only 20.

My life has absolutely been flipped upside down, i have tried everything reccomended for me and I'm feeling as if doctors are honestly sick of me 🥲 The steriod cream would help at first but now I'm noticing anything in contact is literally burning + my skin still tears/ bl3eds as it has since oct :(

I'm thankful for how supportive my partner is, but it feels as though no one understands how much this physically hurts, I've been out of work for awhile and he's provided for me with no complaint. I try sell creations at home to ease the load on him, but i can hardly sit comfortably/ walk comfortably, the guilt as i live in with his family is even worse!! I want to be able to support him financially aswell again, not just emotionally.

He is truly the best partner i could ask for however talking of getting into work with his family (as im not comfortable sharing my diagnosis) is such a hard conversation to have without mentioning it?? I've been healthy my whole life 😕

Doctors say their is visible redness (as I'm also aware) however that's the only sign they see. Early on i thought lichen without the bright white patches as i can indefinitely see very dry skin close up, but my doctors never seem to note this? It's intense pain/burning to the point all i can do is sob, I'm genuinely at a loss.

It feels like my struggle is invisible, I would've hoped I'd be working and saving at this point in my life as i was beforehand. My cats live in with my mother hours away from me as previously i had to move in with my partner due to my living situation breaking down elsewhere + we cannot house my cats here. My plan was to save up to get a beautiful home for my two babies to live with me again, it feels like a spanners been thrown into the works :/

If anyone has any recommendations of what to do please please share, as i sit here it's early hours of the morning in a flare up💔 I'm absolutely willing to try anything, i do not want to feel this way :,)

i appreciate any suggestions, thank you for reading💗💗

I hate everything I hate that I have to go to pt 2x a week I hate that I have to let people shove their fingers and items into my vagina I hate that I’m broken I hate that this affects my life and I hate that physical therapy takes away from my life I hate everything

Just a vent post really, also posted in r/chronicpain.

Why is every single medical appointment such a fucking fight every time to advocate for myself and be heard??? Like even with pain management doctors who are supposed to want to help people like me.

I literally asked about pregabalin because we haven’t really tried many meds for my severe neuropathic pain and he said oh you’ll get fat and nobody likes taking medication ????? Like ????? Excuse you? Who are you to tell me ‘getting fat’ is more important than having a good quality of life. I’d rather be a bit pudgy and in less pain than being in torture levels of pain and skinny.

And the one time I look presentable (hair done, have been eating well so no weight loss, makeup on), he thinks I’m managing well and don’t need anything further. Even though I’ve JUST told him the pain is searing and it literally feels like I’m being branded. I shouldn’t have to look fucking tired and sick and be on the verge of offing myself (which I was last time I saw him) for my doctor to take me seriously. And even when I show I’m coping awfully due to the pain he just tells me to take it up with the psychiatrist anyway. So what do I have to do for my PAIN MANAGEMENT doctor to actually do some fucking pain management.

Fuck absolutely every fucking doctor. Nobody cares. Nobody takes me seriously. Maybe it’s because I’m a young woman. I don’t know. But I’m sick of having to beg and plead for the bare minimum, only to be dismissed anyway and sent on my way.

I am 29 currently, turning 30 EO next year. This is my 10th OBGYN because everyone gives up on you if "their playbook" didn't work without even trying anything else.

Anyway, my vulvodynia is 90% better, but I still have some residual surface level burning, which I'm scared could bring me back to square one after I'm done with my urinary prophylaxis protocol unless I figure out what's causing it. No OBGYN so far was willing to do a biopsy, fluid smear, prescribe me estrogen, or any pain/nerve management meds....

So I come in, it's a man with a wedding band. Start talking about my concerns, my experiences, my pain when I had ureaplasma, almost cry.

His first response: "oh lots of women have ureaplasma and they come out just fine". Ok? I'm obviously not fine though?

He then interrupts me a minute later and asks: "Are you planning a pregnancy?" I said "yeah, in a year or two".

"Why in a year or two, why not now?" ??? "We want to get married and buy a house before having kids"

"Do that after having kids" - "Why?"

"You'll never be younger or healthier than you are today" and I lost all hope then and there.

"You have PCOS, so your fertility will go down with age, too" - disproven recently, but alas I said "I am one of the few women with PCOS that do have a regular cycle and ovulation" - "Yeah luckily, but that won't last forever." ???

He kept going on about my medical history, and we came to the point of insulin resistance. For context, I *am* overweight, 200 lbs, but I'm also 5 foot 10 - almost 11.

"You need to lose at least 20 lbs ASAP so you can get pregnant" - "I can't get pregnant at my current weight?"

"You can, but you'll get diabetes and have a giant baby that will require a C section" - OK

I left feeling so disgusting. I am a fertile woman who is actually planning a pregnancy, and I got treated like a piece of meat who has no other purpose but to be an incubator. I can only imagine that he treats infertile women and women who are childfree by choice like collateral damage...

And in retrospect, I kind of wish I asked: "If your wife had chronic pain down there, would you still wanna fuck her? How exactly do you expect me to make a baby before getting cured if I'm scared of having sex?"

I just needed to get this off my chest in a community that understands.

I was diagnosed when I was 21 and i’m 24 now and even at 21 i felt like i was behind sexually. Now that I’ve been doing PT and am off birth control and have learned how to manage my symptoms I want to find the right person to take that next step with. The thing is, I feel cheated like I never got to figure out if I even liked sex before this condition brought me so much pain and discomfort. Now it feels even more daunting to take that step when I already feel so behind. And it feels mortifying thinking about having to tell a future partner not only that I’m a virgin but that I have this condition. Can anyone else relate?

I had my 2nd UTI in my WHOLE LIFE September 2025. It lasted a MONTH. I ofc took AZO and cranberry to flush it. My coworker even offered me hibiscus tea. Nothing was clearing it. I went to Urgent Care, and surprise surprise. We love American Heath Care. Useless. The doctor was like it might not even be a UTI. She didnt even want to hear my 2 cents. I had all the symptoms, she then Prescribed 2 weeks of Cephalexin, cleared it but then I began to feel burning. Went back to them got another doctor and got told it could of turned into a yeast infection. Ive never expected a yeast infection before. Fluconazole then prescribed. Also asked for a STI test. Got called later by a gentleman and was told it COULD be but they were not for sure. Absolute joke. They then gave me Azithromycin.

I then went to a Primary Doctor and Gynecologist. Meds shoved down my throat. The UTI kept cycling into a yeast infection still. I was clean on EVERY FREAKING LAB WORK. PAP SMEAR. BLOOD WORK. URINE WORK. EVERYTHING. Even got tested for Diabetes?? The doctor literally pulled her phone out and asked ChatGPT. I was in shocked how much money I spent with no answer. One doctor told me to change my laundry detergent, underwear type and body wash. I had Dove which she told me she has alot of women that use Dove and had discomfort. Another Doc then told me to get Acidophilus. Which I did. I take it everyday still and it seemed to cleanse me.

I was given Doxycycline Hyclate, Fluconazole, Azithromycin, Cephalexin. Constantly. My body began to reject it. September 2025 to January 2026 I was suffering from discomfort. I had no answers.

I also saw The Goddess Collection, I decided to try their herbs as well and I've been 90% clear of the burning and discomfort. It comes and goes fainly and shortly but its not as bad as it used to be.

If anyone has experience this please let me know if you have any answers to help. I cannot be dropping $1000s again in this economy🤧

After a couple years of painful sex since giving birth and months of sex therapy and pelvic floor therapy, I got diagnosed with provoked vestibulodynia today and just needed a place to come to because I have never heard of this before and I had spent so long being so utterly confused and scared about what could possibly be going on with me.

In a way I'm relieved to finally be putting a name to what's happening, and reading through these posts have been helpful and inspiring, but I have another problem that I just need to get off my chest and also see if anyone else can relate to.

I was prescribed a testosterone/estrogen cream to apply to the area and told to clean really well because she observed some build up. But for whatever reason, for as long as I can remember, I have this huge fear of touching myself down there- which is probably why there is build up. I was never taught how to properly clean there so this combined with the horrible feeling that comes with touching there is probably why there's build up in the first place. So I'm feeling really fearful about using this cream, and at the same time I know it's something I need to do because I want to be able to return to intimacy with my partner and face this anxiety that is holding me back mentally and physically.

So yeah, just feeling a lot of shame, embarrassment, and fear right now, but also some relief that I'm finally getting some answers and pride that I've been able to work on so many things in pelvic floor therapy that I was terrified of before.

Just needed somewhere to get this all out. I would love to know if anyone can relate to these feelings because I feel so pathetic that I'm a grown woman and feel so much anxiety and shame around my vagina that I can't even touch it.

I’ve dealt with the problem for roughly seven years now. I’m over it. I’ve spent so much time and money but nothing works. I’ve tried about everything I can think of (outside of testosterone cream because my specialist insists my issue is nerve pain and I can’t find over the counter stuff anywhere) be that lidocaine, estrogen, pelvic therapy (which did help but now that I’ve stopped going is back to normal), gabipentin, you name it. I’m just tired of this and have accepted that I’ll propose never have penetrative sex like a normal person.

I think I'm going to give treatment another year before getting surgery. I have had pelvic pain (from endometriosis and vaginismus) for the last 5 years. I don't want to drag this out anymore than it has to. My gynecologist hasn't been listening to me and pelvic floor therapy has been the biggest waste of time. This condition is so isolating and depressing, I don't know how long I can stand it.

I’m really just angry that yes they have terms right so vulvodynia, IC, Vestibulodynia, etc. but it literally just means “pain in or of” but not why… why is there literally no research…. I’m just sad that I was a normal person for 23 years and now I’m not and it’s ruining my life, my confidence, my motivation, my job, my relationships and I’m really angry. I alternate between sad and angry.

this post is probably gonna be all over the place bcs I’m stressing out…. but lately I’ve been feeling like I’ll never be able to be happy again.. 6 years of this torture of a condition, my symptoms got worse in the last few months and I just cant deal with it anymore, I can’t I don’t know how to find the strength to fight for answers and a solution( if there even is one), I don’t know how to stay sober in these circumstances, I don’t know how to be happy

I’m supposed to do a biopsy soon to find out if I have lichen sclerosus, since it’s obvious there is a skin problem besides the nerves and muscles, and I’m terrified. I am terrified of the results.. if they come back negative that means no one still hasn’t got a fucking clue what is wrong with me let alone how to help me, it means I still won’t have answers even after 6 years of trial and error.. if that happens I don’t think I’ll be able to handle it, I don’t think I can handle another disappointment.. but if it comes back positive, and I finally get an answer to what is wrong with my body, it means I have it for life… so how should I feel? how can I be happy? this is what’s waiting for me? this is my future? how. am. I. supposed. to. be. happy.?! I don’t know how and I don’t know if I ever will

I’m tired of it all, tired of doctors, tired of tests, tired of treatments that don’t work, tired of medical bills that seem like a huge waste of money since it very little to nothing helped, tired of so many disappointments, I’m tired of symptoms, I’m tired of side effects from meds I have to take in order to make this condition at least a lil bit bearable, tired of feeling like a burden, tired of complaining, tired of worry and fear this condition brings, I’m tired of fighting

are there any women with this condition that are happy and have a good life? is that even possible to achieve? or r we doomed… bcs it sure looks like we are

I am feeling quite frustrated and upset with my physical therapist. I have been seeing her for 6 months now, and I genuinely do really like her. She’s so nice, and has helped me SO much, and I feel like I am almost completely better. Honestly this has been a slow erosion of my trust in her over the last few months - after seeing her for about 3 months she wanted me to back off to every other week, which with the amount of pain I was in I was NOT ready for.

Now, last session she basically told me my remaining pain is all in my head. I have improved so vastly and I’m so grateful, but I do still have a little bit of pain left - mostly clitoral and on the upper left side on my labia and a spot right outside my rectum. I have told her this multiple sessions in the a row, but she’s never checked the clitoral area/muscles. Last session she told me she wants to back off to once a month (we are now 2x a month which we just went down to) and I was confused. I said I’m still in daily discomfort so I don’t get why we would back off. She said the remaining pain esp the clitoral pain is probably because my “nervous system is ramped up” and it takes a long time for “things to settle down” and we need to look at “at home management”. I was so mad. I have known this entire time this isn’t my nervous system it IS muscular.

Fast forward to this past weekend and I said I’m going to figure this out myself since she won’t help me. I got my wand and went in there poking around and I FOUND the tight spot. I put pressure on it and held, and now after doing that for a few days my pain has dramatically improved. And guess what? It was the ischocavernosus muscle - which connects DIRECTLY to the clit and has been show to cause pain in that area. She never checked it, she just assumed it was all in my head. I’m happy that I’ve found the source of my remaining pain and I know I’m close to being 100% better, but I’m so so mad at her. For gaslighting me and not believing me, for chalking it up to it being in my head, and for furthering the stigma that I don’t know what’s going on with my own body. I honestly don’t even want to see her anymore, but with how close I am to the finish line I don’t feel like finding another PT.

Anyway, rant over. Thanks for reading if you did!

30F. I have always had painful sex. Suspected nerve ending issue, the painful spots are at the south of the entrance. So, during penetration, it feels painful at the entrance and basically like nothing/borderline numb any deeper in. I believe it explains any hint of libido I have instantly dies as soon as I actually have sex/get penetrated.

I am scared I'm going to ruin several relationships at once. I currently have a very loving FWB, my best sex yet, even though it's still overall disappointing and something I always want to be over; I stopped wanting it from the first time we had sex after seeing that no matter how much foreplay we did, it led to the same painful penetration like in my previous long term relationships. I am ashamed to admit that I am fantasising about others lately, but I know that I would be leaving him to experience the same disappointment - just with a different man. Just like what happened to all relationships where I was the breakup initiator.

In total, I have had sex with 7 men. All very different sizes and personalities. Some 1+ year long, some hookups. I feel empty, like I can't even enjoy a hedonistic life when I try - I don't want short term flings, I just get tricked by my body in the "crush" stage and then it all just dies at penetration. I have been to gynecologists, they are overall useless (one even told me to drink wine, I wish I was joking), and it's no longer worth the stress.

I think I am extremely sexually frustrated, yet I can't actually feel a response, my body experiences zero sensation. I am just thinking about sex constantly, in my head, watching myself enjoy something I never had enjoyed to begin with, and feeling nothing, just empty and depressed. It's getting so bad, worse and worse every year. I feel like I can't handle it, it's making living difficult.

I feel tortured by my own brain. I can't focus on anything else. Why don't I feel anything when I'm essentially obsessing over sex at this point? I don't understand. It's all so unfair.

Sorry this post is a bummer. I got diagnosed with vaginismus/vulvodynia in early September when i tried to have sex for the first time with my boyfriend and it was so painful I burst into tears. Like several times. All my friends told me it should be uncomfortable but not unbearably painful so i made an appointment with my gyno to get a wellness check (I’ve never had a Pap smear done) and to ask. My gyno couldn’t even get a q-tip in for the Pap smear.

She referred me to pelvic floor therapy and on my own time i was doing daily dilators to practice. I’ve been in weekly PT for about 4 months now doing stretches and exercises and those haven’t seemed to help at all.

A few weeks ago my PT told me to go to my gyno and ask if they can prescribe me a testosterone and estrogen topical cream for pain relief. Got that prescribed. Been using it for almost a month twice a day. No real change. She says that in 7 weeks if there’s 0 change she could up the hormone dosage or we can start looking at surgery options.

The lack of progress has started to make me slack off in exercising and dilating because i just feel like there’s no point. If it’s a nerve issue i can’t fix it. My boyfriend and i’s sex life is horrible because everything just stresses me out knowing what i can’t do. He’s super supportive and sweet but he hasn’t had sex in almost a year now and I don’t know how much longer he’s going to want to put up with me.

Just trying to find ways to keep fighting for this when I’ve made maybe 1% of progress in 6 months.

I went to a highly recommended Urogynecologist/pelvic pain specialist the other day for burning pain on my vulva that’s been happening for about 7 months now. It just so happened that when I went, my symptoms basically had disappeared, so I was just recounting everything to her. She diagnosed me with vulvodynia, recommended a lidocaine aloe cream, and told me to come back when my symptoms started again so she can take a look. I told her I was diagnosed with ureaplasma parvum by my gyno and took the proper rounds of antibiotics. She chastised me to the max, stating that it was an STD, only to later say that it could be natural occurring. I let her know that I hadn’t been intimate with my partner for months before I had the onset burning. She said “well you got it from somewhere”. She said I didn’t need therapy because my muscles aren’t tight and she didn’t see a reason to upon her exam.

Fast forward to yesterday, symptoms return. I call the office. Front desk lady barely lets be speak before saying that I was recently there and need to give it time. I told her I’ve been treating this for months and was told to call when I had a flare up. Front desk lady also told me to test myself and my partner for STDs. Eventually she contacted the doctor and she said she will no longer be treating me, that now it’s pain management and I would need to see a neurologist. I’m going back to my primary care this week, as she’s the only one who’s been supportive this whole time.

These are my symptoms, in case anyone has similar:

*Burning pain in surface level of vulva, radiates between urethra and clit, and forchette. Feels like someone holding a nail file to my skin.

*Burning alleviates when using lidocaine/benzocaine sprays.

*Minimal/no burning when standing, laying down.

*Not affected by bladder irritants.

*Never any pain inside, insertion isn’t painful.

*Alleviates during period, gets worse 2 days before.

*I can sometimes “think it” away, but it’s never permanent.

*Yoga and exercise helps immensely.

*Showering feels like I “restart” the pain.

*Pain has gone down, about 75% from when I started.

Things I’ve tried/been tested for:

*PELVIC MRI inconclusive

*Transvaginal ultrasound inconclusive

*Xray of spine inconclusive

*Pcp prescribed topical gabapentin, waiting for it to be delivered

*Negative for all STDs except ureaplasma, which I treated.

*Tried steroid cream with no success.

*Aquaphor/balms really don’t make a difference.

*Switched to fragrance/irritant free everything.

*Hormone levels are normal.

*Frida postpartum spray gave me the most results, I was actually back for normal for 4 days for the first time in months, but has taken a while to help again.

*I still haven’t cancelled an upcoming PT eval despite what the specialist said.

I’m feeling at a loss right now on what to do. Any advice helps!

Hi, I have had pain in my vulvar/vestibular area for 2 years maybe? At first it was little but then it increased and eventually I went to see a vulvodynia specialist (who I'm followed by right now). I'm young and I usually don't talk to my friends about this, they don't understand what this condition is since they have never heard of it before, so they are uninterested. This probably doesn't help the fact that I, sometimes, remember that the average woman doesn't suffer like me and doesn't have vulvodynia. When I remember this (even tho it's a common fact) I feel so much jealousy, even for my friends who get to live carefree. I hate that my vagina doesn't work like how a vagina is supposed to work like. Ever since the pain has worsened (the beginning of this year) I can't look at sex the same and feel like it is everywhere I look. I loved to talk about sex with my friends but now it just feels like I'm talking about something that they can have, and I cannot. I don't laugh at sex jokes anymore I hate seeing sex-related jokes on social media/TV because it just reminds me how I am not "normal". I don't talk about future relationships anymore or I do but I feel empty inside. Nobody cares my friends don't care, I lost the only friend that cared and wouldn't just say "sorry I can't help you with this", my parents don't care my mom doesn't care. I see a psychologist but obviously it doesn't feel as if I'm talking about it to a friend. I hate that I don't feel like a real person, like a real woman, sometimes my condition makes me hate other women. I hate reading a book even SLIGHTLY mentionin sex because my head just goes "oh but you have vulvodynia you wouldn't be able to do that". I hate that I have to work for something, a normality, that other girls are born with. I don't get why I can't just be normal

Harsh, I know, but after years of having to fight my insurance over every treatment I try for my vulvodynia, my patience grows thinner.

I have had 24/7 chronic itching for 30 years that is destroying my life. I hate leaving my house to go to work because fighting the urge to scratch my vulva in public is unbearable. This year, doctor recommended trialing a DRG stimulator. I was intrigued because I could do a week-long trial before committing to the implant.

But my insurance keeps denying it. I have literally tried everything else, vestibulectomy included, and am at the end of my rope. I'm so tired of jumping through hoop after hoop for every little thing that might help. I told my partner I don't even want to be alive anymore. Being chronically ill is hard enough without having to fight for yourself every step of the way.

I hate this condition. It started for me in early Janurary, and I have not felt normal since then. The extreme pain is gone, but I still have pain after a long day. I am always aware of my vagina now, and it will randomly ache. I've only had sex once, and I got such awful cramping that I have not been in the mood again. I stopped going to the gyno because again the pain is not constant. I just don't know what to do, I feel broken and we never even found out what caused the extreme episode. Its taken a toll on ny mental health, and I'm really struggling with simple things like leaving the house. Idk if anyone has any advice or if we are all going through the same shit, but this sucks.

Hi sorry for the vent and tmi. So I (34) was recovering from vaginismus last year and feeling normal finally, but I used some estrogen cream and had a horrible reaction to it. Months later and the burning pain eventually went away a bit, I got a job where I sit a lot, the burning has come back and even worse, I'm hypersensitive! It's sensitive to even touch there. So it's uncomfortable now to even have clit orgasms because of how sensitive I am:(

I've tried aquafor, cortisone cream, and some emuaid for the burning but they either haven't helped or made it worse. The best way I can describe it is that crampy feeling like when I have my period. My PT says it will go away but I feel like my body is broken, and even when I try to get help, I end up with more pain :( Why is it so hard to just have a body that works like normal? I don't understand why things felt pretty normal just a few weeks ago and now I feel completely messed up. Am I just stuck having flare ups all my life now all because I used a cream?

If anyone had any kind of advice or support id really appreciate it ❤️

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It is so painful to sit down it feels like someone put chili peppers in my vulva and it hurts so bad to pee I start to tear up :') is there anything that helps with these? I already use estrogen cream at night (which I have to start again because I've gotten out of my routine) and I do wear loose clothing, I actually avoid tight clothing at all costs because I'm autistic and can't handle it anyways lol. I also can't just stand up as a solution all the time because standing makes me dizzy and it hurts (bad joints)

I just wish my body is/was normal, I have so many different issues and it just feels like my body keeps collecting everything like Pokemon cards 😭 body we do not need to collect everything!! It is not cool, I don't like being a medical mystery 😞 I also don't like being severely medically complicated.