Feeling a little defeated

[u/kittycouture5683]

Hey girls, I dont really have any one else who understands that I can rant to so please forgive me for doing it here but I walked in to work this morning and my boss came over and gave his greeting than asked if I did anything this weekend. I had a super bad flare and so I just had to be bedridden. I told him I didnt do much and he gave me such a funky look and said "jeez. You're 23 and youre doing absolutely nothing with your life. Just gonna waste away huh" and ive been crying ever since. Its just so fucking frustrating. Like I dont want to be this way. I don't want to be in agonizing pain every second of every day constantly nauseous with leg pain that makes them go numb and I cant walk. I dont want to have to be in bed throughout the whole weekend or cancel plans because I can't get out of bed but thats what this disease has done to me. Even the surgery didnt help much. And he isnt even the first person to have said something along the lines of that to me. It makes me feel so fucking worthless all of the time. And even if I didnt have a chronic disease and just wanted to spend my time in the house, who cares? Why say that to anyone? Ugh

[u/dollyboochky]

I literally feel this in my bones. I’m 24, I want to be experiencing things. It’s exhausting when family members or strangers act like I should be able to have some Kind of routine or schedule for my chronic illness. But also people need to just shut out about how people manage and spend their time especially if it’s not harming anyone!

My time even when I am well is generally not being spent doing things most people in main stream demographic of 24 yrs would be up to and that’s ok. Everyone should be get to do what brings them joy especially when given the opportunity.