r/endometriosis • u/Dapper_Ad4206 • 8h ago

Surgery related Surgery was a bust

I had the surgery, and they told me “you have no endometriosis” but what happens to the possible lesions they found before were they just nothing? I haven’t had my post op yet but I’m very frustrated. I know I have adenomyosis but could that along with poor pelvic floor muscles really be having me in this much pain? I thought for sure they would find something but they didn’t so basically can just the adenomyosis and bad pelvic floor really cause such significant pain? I mean I’m glad they didn’t find anything but now it feels like back to square one as far as diagnosis

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u/donkeyvoteadick 7h ago

I'm not exactly sure what you're asking but yes, adenomyosis and pelvic floor dysfunction can both be very painful.

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u/OutrageousSecret7455 4h ago

Yes both adenomyosis and the pelvic floor muscles can have you in a hell of a lot of pain, I’d suggest seeing a pelvic floor physiotherapist as they can help with that aspect of things and a pain specialist can help you with stronger anti inflammatory medication and pain medication you may need to help an iud can also help with this

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u/Gilded-golden 53m ago

As far as I'm aware it's not possible to tell endometriosis and adenomyosis symptoms apart - adenomyosis IS endometriosis, it's just that the anatomical location of it is within the uterus itself. And the uterus is indirectly connected to the pelvic floor itself and can cause issues. So yes, it can explain all endo-like symptoms (except non-pelvic symptoms like chest pain).

Personally I wouldn't be frustrated by this, but relieved - unlike endometriosis, which can recur anywhere, repeatedly, and even after excision, adenomyosis *does* have a cure, in the form of a hysterectomy. Of course there are plenty of reasons you may not want to have a hysterectomy now, but at least it's a curable condition if you ever absolutely need that in the future! I always have my fingers crossed that most of my symptoms are from my adeno rather than my endo, because there seems to be a better chance of long-term cure if so.