r/HirayamaDisease • u/NorthAd4961 • Aug 16 '25

How are you affected by cold weather?

I don’t experience direct pain from my HD, but in temperatures below 65° I lose all muscle strength in both wrists, hands and fingers, and both hands ache, or are insensate. Fortunately I live in FL so the temperature is in the 80°s most if the time. I’m the only one here who thrives in the heat ;-)

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u/Shot-South7100 Aug 16 '25

Yes, the same thing happens to my son. He pursued a diagnosis because his muscle strength declined so much during the winter months, especially when he was spending hours outside in 20–30°F weather.

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u/TraditionalWeek256 Aug 19 '25

I have a cold paresis. Sadly, I am living in a bit cold country. 😓