r/HirayamaDisease • u/Vegetable_Cloud_5172 • Jul 29 '25

Hey! Anyone here from the Philippines who are currently suffering from HD?

2 Upvotes
  • permalink
  • reddit

100% Upvoted

6 comments sorted by

1

u/Vegetable_Cloud_5172 Jul 29 '25

I am really struggling rn, physically, and at the same time mentally because I don’t have any idea where did I get this disease. I always thinkin that I am the only one who have here in my country. :<

Any advice from u guys?

1

u/Vegetable_Cloud_5172 Jul 29 '25

I’ve never been to a doctor for diagnosis. I only did some research and luckily, I found this community.

1

u/Vegetable_Cloud_5172 Jul 29 '25

The only way for me to cope up to this situation is going to the gym for years, which is at the same time, was frustrating bc my right arm was so bad.

1

u/Vegetable_Cloud_5172 Jul 29 '25

Btw I’m 22 and start noticing the changes in my right arm since I was 18.

1

u/SnooMuffins5431 Aug 01 '25

Hello, not from philippines but i would suggest going to a doctor for a proper diagnosis. It could be another disease and if so there may exist some sort of effective treatment

1

u/SnooMuffins5431 Aug 01 '25

e.g: nerve compression (could be reverted with surgery)