I am so exhausted.

I am undiagnosed and have symptoms such as;

Daily headaches

Feeling like I could constantly sleep no matter what

Unrefreshing sleep

Dizziness when standing and walking

Shortness of breath

Neck and back pain

My dad heard me crying in the bathroom because I was at a breaking point and just over everything and told me to come talk to him.

I went and sat with him and he told me I should stop listening to doctors because they aren’t going to help me and that I feel the way I do because of parasites. He said he got fenbendazole for me to take because it apparently will cure me. He said it was what cured my aunt’s cancer and it wasnt the chemo that cured her.

I didn’t want to be disrespectful so I said at the very least I would do some research on the medication and see what it could do for me and my situation. (I dont believe this parasite stuff at all) he got upset and asked what I have to lose and why wouldn’t I just take it? No questions asked.

Im already feeling horrible and honestly wanting to give up on life, i was crying in the shower just miserable and now my dad is telling me i have parasites and to take some worm medicine from amazon. Maybe i really should give up.

I’ve been seeing my rheumatologist for 4 years and just got the news they would no longer be accepting Medicaid.

This is a private also with just them and one other, so it’s not like it was a corporate decision.

I asked, and his nurse was evasive but hinted it was about low reimbursements.

I just find it so frustrating. I’m poor. This guy drives a sports car and has a world map in his office of the places he’s traveled, but iI guess that’s not enough.

I don’t know if I’m being unreasonable or entitled, but that’s the way I feel. Just needed to vent.

It was a rant I felt like doing

People always tell me "ah but I know someone who had *random chronic illness* and he was persistent and he managed to *insert succes* "

I don't understand people's obsession with being productive

I can't work long-term because of my health problems, and people tell me, "Well, I know someone who's sick and they don't make a big deal out of it."

Are people being condescending on purpose? Or am I not trying hard enough?

Just curious how you all are staying cool these days! With my concoction of diagnoses + a huge crash I had back in Sept + living in North Carolina, I am STRUGGLING. Worse than ever. At my part time job temps are mid-70s indoors and even with a neck fan I am sweating buckets; it seems to mostly help me cool down once I sit down but not much else… The sweat is a huge problem to me since I’ll be beading sweat just from sitting/standing and doing nothing else… it’s just gross and kind of embarrassing.

Any help is much appreciated! Thanks so much!

for context, ive always had a lot of UTIs as a kid, and in the last half year theyve started happening again every week or so (maybe related to kidney? unsure)

i try not to tell people too often but when i do open up, i feel like im constantly hearing people ask me if im clean enough. im honestly so exhausted and despairing about this.

not only is it humiliating trying to justify whether you WASH yourself frequently enough, if you do then the same people obviously don't care or are too embarrassed to even talk about it so why ask??? the amount of energy i put into fending off sickness is more than everyone else i know put together, i swear. i ask somebody my age (20+) how often they wash the towel they use and they tell me either once a week or their mum still does their laundry??

literally the only thing that makes a difference if whether i get 9.5 hours of sleep every. single. day. once im sick thats it, and i cant eat any carbohydrates for the next three days or my fevers get worse.

the worst part of it is that ive had to teach myself each and every part of this on my own, since im from a neglected background. every single piece of common self-care knowledge everyone else takes for granted ive had to meticulously double-check, especially since it might be some unknown factor in me getting sick. but how laughable is it i cant tell anyone that, since they'll just think how much more unhygienic i am since my mother was so neglectful! i literally cant win

oh and it doesnt help that im trans lmao

im sorry that was so long 😭 just really needed to get that off my chest

Wrote this for my own therapeutic benefit, but hoping others can relate.

There is a particular kind of grief that comes with chronic illness that people rarely talk about — especially when you are still “high functioning.”
People assume that if you are intelligent, accomplished, motivated, or capable of moments of productivity, then you must not really be struggling that badly. They measure suffering by visibility. By appearance. By whether you “look sick enough.” And if you don’t, the grace extended to you becomes conditional.
What people don’t see is that chronic illness is not simply pain or fatigue. It is the constant internal negotiation between desire and limitation.
I want to accomplish things. I want to work. I want to exercise. I want to answer texts, call friends back, show up for people I love, be present with my spouse, continue becoming the surgeon I fought so hard to become. The desire is still there — painfully so. That is what makes chronic illness so psychologically brutal. The motivation does not disappear. The capacity does.
And people often cannot understand the difference.
There is a unique exhaustion in having an ambitious mind trapped inside a body that cannot consistently follow through. You begin living in a perpetual push-pull between who you are internally and what your body will allow externally. You punish yourself for limitations you did not choose. You carry guilt for resting, shame for canceling plans, embarrassment for brain fog, and anxiety over every forgotten word or lapse in memory. Even after decades of illness, you still somehow convince yourself you should simply be “trying harder.”
You mourn things while they are still technically available to you.
Friendships become complicated because even a thirty-minute phone call can cost you days of recovery. You want closeness and connection, but the energy required to maintain relationships becomes inaccessible. People interpret your absence as disinterest when, in reality, responding to a text can feel neurologically overwhelming.
You begin isolating not because you want to be alone, but because participating in life becomes physically and mentally expensive.
The same applies to love. You want to give your partner the same energy they give you. You want to be emotionally present, intimate, engaged, spontaneous. But chronic illness often leaves you existing in survival mode, carrying the persistent fear that you are becoming a burden to everyone around you.
And then there is the resentment — the kind nobody likes admitting out loud. The resentment toward healthy people who move through life without having to calculate the energy cost of every decision. The resentment of watching people take for granted the simple privilege of waking up and functioning without pain.
When illness forces you to step away from your career, the psychological impact becomes even more profound. Especially in medicine, where identity and worth are so deeply tied to productivity. You suddenly find yourself home for months, told to “rest,” while your future feels like it is slipping quietly through your hands.
And rest does not feel restful when society has conditioned you to associate stillness with laziness.
So you exist in this eternal torment: too sick to fully participate in life, but not sick enough for the world to fully understand your suffering.
Your days become consumed by the mental battle as much as the physical one. The pain is exhausting, but so is the guilt. So is the shame. So is the constant self-monitoring. The endless fear that your body is failing faster than your dreams can adapt.
What makes this even more difficult is that our healthcare system is fundamentally not designed for people with complex chronic illness.
These patients require time. Nuance. Long conversations. Pattern recognition. Context. Someone willing to sit down and understand how multiple failing systems interact with one another psychologically and physiologically. But modern medicine often cannot accommodate that reality. Physicians are constrained by time slots, productivity metrics, RVUs, documentation burdens, and increasing pressure to move patients quickly.
And the truth that frustrates me most, as someone inside a flawed system, is that the training to manage complex chronic illness is often incredibly limited.
Patients are fragmented into body parts and passed from specialist to specialist. Some of this is necessary — specialization matters. But there is also a dangerous tendency to dismiss what is not immediately understood. Symptoms that do not fit neatly into a diagnostic framework are often minimized rather than explored. Patients leave feeling unheard, burdensome, or psychologically dismissed simply because their illness is complicated.
Sometimes what patients need most is not another referral. It is someone willing to slow down long enough to truly listen.
Because chronic illness is not just a disruption of the body.
It is a disruption of identity, relationships, ambition, confidence, independence, and the fundamental way a person experiences being alive.

hi everyone, i just needed somewhere to vent and maybe get advice if anyone has any.

TW: suicidal ideation.

i’m 22f and i’ve had chronic migraines since i was 3. since then, i’ve been diagnosed with a slew of other chronic illnesses (POTS, fibromyalgia, PCOS, etc), and i’ve done everything in my power to keep living but i feel like i’m hitting a wall.

i got my dream job recently. i’m not going to get into specifics, but it doesn’t require me to be on my feet at all, just at a computer all day, dealing with medical stuff. i literally prayed for this job and put everything i have into it, but it’s still causing me to have flare ups. i have had migraines almost every day for the last month, and triptans only do so much. every day i have to go to work i absolutely dread (i am neurodivergent as well, so constantly having to mask at work is so hard). i literally cry before my all of my shifts, and i feel so stuck. i don’t have the choice to stop working, because i need the income.

my employer is somewhat understanding of my health issues, but at the end of the day they’re still an employer and will only accommodate so much. i have a constant sense of dread about work and honestly feel like i want to end my life some days. it feels so dramatic because this is basically the best option i have, and i wanted this job more than anything.

has anyone else experienced this? how did you cope?

Where do I even begin. Useless, incompetent, and thick are too kind to describe them.

I have Dysautonomia, POTS and breathing pattern disorder post COVID (all diagnosed) and hypermobility. I am ill at the point I can no longer work full time and basic housework is difficult. I am utterly exhausted and feel unwell all of the time.

I left my last GP after they refused to authorise me medication I was prescribed from a specialist clinic for FOUR YEARS, despite my repeated requests and declining condition, but because they didn't prescribe it they wouldn't give me it. They tried to tell me I had anxiety (I don't have it), fibromyalgia (I have no symptoms), fucking HAY FEVER as to why I was so tired DESPITE me already being diagnosed with the above at this point and not suffering from hay fever ever.

I ended up in hospital after I started getting constant stabbing chest pains that varied in severity. My GP told me it was anxiety again and booked me in for an ECG two weeks later (lol), and the hospital said I'd become very inflamed from the breathing issue and gave me anti-inflammatories.

I then try and get my tablets on repeat prescription only for the GP surgery to repeatedly lose the prescription or write it wrong so I can't get it that day, leading to me having run out of beta blockers for a weekend. It seems to be sorted now but my god.

Oh and then they never review my medication so I could be on all sorts unless I chased them for it. My vit B is well *above* (not below) range and no one cares about that either.

And years later with demonstrable proof they still give you the side eye as if you're faking it🙄

I sometimes get lost with so many medications, and I haven't been able to find a convenient pill box for all of them. Right now, I keep my daily medications in a pouch, and it's not very practical.

a few years ago at 20 i started developing autoimmune problems. i saw various doctors and specialists but don't have any official diagnoses as i didn't do all the required tests. the drs thought i most likely had sjogren's and small fiber neuropathy (my country doesn't do biopsies for this so i'd have to do all other tests to exclude other possible causes).

since then i've had some progression in my symptoms. e.g. for a year now my mid/lower abdomen started burning internally (maybe my intestines??). i saw a dr but i never followed up with any tests.

i know i should get my symptoms checked again but a part of me feels like it'll be no use as they're probably SFN related and the few treatment options available i don't want to take.

i don't even know why i'm posting this..

i’ve been waiting for my rheumatology appointment for two years, when i finally got it in february i was quite disappointed. the rheumatologist seemed to be rushing me, not actually properly testing the mobility of my joints and shoving “fibromyalgia” onto me. now, i don’t doubt that fibromyalgia is real, but i feel it is over diagnosed because doctors don’t have the time or resources to actually figure out what is wrong with some people. so under this diagnosis of fibromyalgia, we have people with FM and people that don’t, but are none the wiser.
that 15 minutes is important, because she referred me to physiotherapy and has now passed that information off to my gp who wants to prescribe me medication. 15 minutes, and a medication doesn’t feel right.
shortly after my appointment i noticed a lot of hyper mobility that i had never noticed before- because i hadn’t been tested properly in my rheumatology appointment, that went completely unnoticed and i couldn’t contact the secretary to make the rheumatologist aware.
i had my physiotherapy last week, and the physiotherapist saw no mention of fibromyalgia on my notes. she did a thorough exam on my joints and concluded i was hyper mobile, and as i had mentioned the rheumatologist thought i had fibromyalgia, she disagreed and didn’t want me to fixate on a diagnosis yet, she feels that i don’t have fibromyalgia but if i did, that i’d need more appointments and exams before coming to such a conclusion or trying to treat something we aren’t entirely sure of.
today, my gp contacted me about off-license medication for fibromyalgia as instructed by that same rheumatologist i saw for only 15 minutes.

this feels wrong, to me. and neglectful.

Have any of u guys lost a lot of ur relationships w/ friends and fam while dealing w this stuff?
And like sleep issues and loneliness? I can’t tell if it’s weeding out toxic people or if I’m just isolating and ruining every single relationship I have (very few lol) feeling extremely isolated, confused, and don’t know where to go
Feel like a retreat would be nice, support groups r hard to find, and this shit sucks….. i want to somewhat enjoy my 20’s and I’ve been robbed off them.
Please tell me someone has a similar experience or any advice lol <3
Thanks in advance, you guys are all warriors

Hey everyone,

I imagine it’s not just me but is anyone else enduring abuse and unable to leave due to disability?

In my case, I have been working with APS but our options are limited. I make just enough money to not qualify for benefits but not enough to actually afford what I need to safely leave (live-in care and appropriate housing).

I’ve been deeply concerned about how staying in my current situation is worsening my health and I genuinely do not know what to do or where to go. What sucks even more is that my condition is highly stress responsive - I very likely would not be bed bound right now if I was in a safer situation.

Would love either some knowledge that I’m not alone in this or any insight on what can actually be done.

Sorry for the length:(

6 years ago I fainted.

5 years ago I fainted 3-4 times a day.

4 years ago I fainted 3-4 times a day and had convulsions during them. I also could no longer physically exert myself.

3 years ago I still fainted with convulsions, I still couldn’t exert myself, but now I was really underweight.

2 years ago I was fainting every week give or take, I couldn’t exert myself, I gained some weight, I struggled with some fatigue, random aches and weakness but I was okay.

1 year ago I was told I had Dysautonomia after years of being told I was doing it for attention, it was in my head, or being diagnosed then being sent to a specialist and being told no that’s not it.

In November of 2025 I severely worsened. I left school. Brain fog, Fatigue, Fainting, puking, pain, headaches, weakness, fine motor skills became difficult, no stairs, dizziness, and a lot more symptoms.

In January I went to an inpatient mental hospital for 17 days. They sent me to the ER twice because I was so sick. They couldn’t help me mentally because I was so sick.

In February I was diagnosed with Lyme disease and Mycoplasma Pneumonia.

From February to now we have tried so much and every day I get worse. Through tests all we can find that we don’t understand is that all of the illnesses I ever had by body still has every one of them. Idk how to explain it…(I’ll try sorry if it’s confusing). Basically after most people get sick from bacterial infections they have antibodies from it. My body has that but also has all the toxins from it as well. My body never clears the toxins.

I have been taking so many things to detox and it’s not really working.

Anyway as of today I can no longer see without an eye patch. I have double vision without it. But even with it my depth perception is off. It’s apparently from the swelling of my optic nerve. Basically the disease is in my brain and is causing inflammation.

I have a headache right now but it’s not terrible but it gets really bad a lot. I can’t do anything I spend my days listening to shows and music. However it’s boring and I fall asleep then I don’t sleep at night.

Mentally I’d say I’m mega depressed but I am very sure that if I was healthy tomorrow I wouldn’t be.

I don’t care about anything because the things I care about I can’t do.

I have no desire to do anything idk what’s fatigue and what’s depression.

I don’t care if everything was taken from me, if I eat or don’t, and if anything bad happens because unless I get better I’m not really living anyway.

Idk if it matters but before I got sick or at least before 3 years ago I was doing really good.

I spent my entire childhood bullied by what felt like every girl and harassed by what felt like every boy. I had something bad happen to me with a male teacher. I got hurt by my grandparents. And a whole lot of other trauma but I became so strong from it.

I was a really good student. I loved sports like basketball and swimming and wake surfing. I loved running in the forest with my dogs. I was obsessed with learning. I spent my free time watching documentaries and surgeries on animals. I had notebooks full of notes on these documentaries and surgeries. I wanted to be an exotic animal vet or a neonatologist. I read studies and documents on neonatal surgeries and cool cases in the nicu.

I came out as a lesbian and watched as all the family and friends faded away. However I didn’t care because I knew my worth. I was diagnosed as autistic but I kinda always knew since my little brother was born and diagnosed. I knew why I was different and it was okay.

I loved making people happy. I loved my teachers and they loved me. I made sure every person in my life knew I cared even the janitor at my school. I hated drama. I always felt like everyone my age needed to grow up and understand the world. I eventually understood that I would just have to understand they are different than me.

Basically I’m saying all this because I have no idea if that will ever be me again. I don’t know if those dreams I had will ever be possible. Those things that were so easy are now incredibly difficult.

I’m level 1 autistic and I figured out how to accommodate myself and was high functioning enough to never need assistance. I have celiac disease diagnosed at 7 and gluten free food is a lot better than food that makes you feel sick. I have EDS my joints do funny things it’s not severe and runs in my family no big deal. This was manageable easy even but all that is impossible when you have Lymes and whatever the hell else.

I feel like my life has been stolen from me and I have no idea what I’m going to do.

If you read to the end of this thank you. I know it’s a lot.

At the start of February I developed a condition that has left me in chronic pain and I'm waiting to be told the next course of action for treatment.

Recently, I got told that this the pain is caused by a large mass on one of my organs (very likely non-cancerous). I believe its is pushing against my other organs and causing very persistent pain. I've been struggling to manage it.

On the day I got this bad mood I was, to put it bluntly, a bit of a bitch. Work was stressful and I knew i was going to get bad news and I was snappy with them for something that was not really their fault. I plan to apologise with a small apologie gift because pain is not an excuse.

I want to find some techniques to get around this. I typically and a very happy to help person but the chronic pain and put me in a chronic bad mood.

Hi,

I'm 19 (AFAB). In August 2025 I had a severe stomach flu that lasted almost two weeks (constant vomiting and diarrhea), and ever since then I've had recurring episodes of severe cyclic nausea and vomiting. I am diagnosed with POTS.

These episodes happen about once or twice a month, last around a week, and are usually worst in the morning. During flares I wake up extremely nauseated, sweaty, shaky, dizzy, with my heart rate reaching 140-160 bpm. I vomit and dry heave daily during these episodes. Between flares I have little to no nausea and can usually eat normally.

I also have constant diarrhea, occasional bloating and early fullness, and mild stomach pain. I've lost over 50lbs since this started, have very little energy, and it's significantly impacting my life.

These are the tests I've had so far:

- Bloodwork, urine tests, CT scan, and ultrasound all normal

- Colonoscopy and endoscopy normal

- Diagnosed with post-infectious IBS

I've tried Zofran (worked initially but no longer helps) and clonazepam without relief. I also have a history of migraines since childhood.

I haven't had a gastric emptying study or been evaluated for motility disorders, MCAS, or other dysautonomia-related GI conditions. I do use cannabis now, but only started long after these symptoms began. It provides more relief than meds at this point.

Has anyone experienced something similar after a stomach virus, or have suggestions for conditions, tests, treatments, or specialists I should look into and ask my Dr about?

Thanks.

Hi! I struggle with multiple chronic illnesses, and I have for most of my life. For those who have the oura ring, have you found it helpful? I’d love to hear your experiences with it. I have an Apple Watch, but that doesn’t do very much, and I don’t love the look of it.

Thanks!

I AM SO FUCKING SICK & TIRED…

Im fed up being my own case manager, receptionist, assistant, care coordinator, insurance specialist, pharmacy liaison, records department, and advocate while actively fighting for my life.

People love to talk about disability like we’re “sitting at home doing nothing.”

Really?

Because I spent the last THREE DAYS doing more administrative labor than I ever did at my old job as a data analyst.

Sending emails.
Sending faxes.
Calling insurance.
Fighting prior authorizations.
Requesting medical records.
Correcting clinical notes.
Fixing inaccurate chart comments.
Calling pharmacies.
Scheduling appointments.
Canceling appointments.
Tracking labs.
Making sure my insurance hasn’t randomly dropped me.
Coordinating specialty care in Seattle.
Trying to prove, over and over and over again, that I am actually sick enough to deserve care.

And somehow people ask:
“Why aren’t you healing?”

WHEN?

Disability just denied me saying I’m “not sick enough to not work,” based on medical records from FOUR MONTHS AGO before things escalated and before tertiary specialists became involved.

Meanwhile unemployment is blocked because my employer claimed I was “too sick to work” and therefore not “able and available.”

So let me get this straight.

I’m too sick to work for unemployment.
But not sick enough for disability.

And somehow I’m expected to survive with no income while managing a life-threatening autoimmune disease?

Make that make sense.

This system does not understand chronically ill people. It destroys them slowly with paperwork, delays, denials, exhaustion, financial ruin, and constant retraumatization.

People see us at home and think we’re resting.

No.

We are fighting for our lives behind the scenes every single day.

I am 30 years old. I got sick a year ago. Since then, I have worked harder trying to survive this system than I ever worked in undergrad, corporate, or nonprofit life combined.

And the wildest part?

The ONLY reason I am still going is because I have a seven-year-old daughter depending on me.

So no, I don’t “sit at home all day.”

I sit at home trying to survive a healthcare and disability system that leaves people like me falling through the cracks.

To everyone in the autoimmune and chronic illness community doing this alone:

I see you.

This is not laziness.
This is survival.

LIKE DAMN IM IN TERTIARY CARE.. DO I HAVE TO DIE FIRST TO GET APPROVED TO THESE PROGRAMS?

I want to preface by saying I strongly dislike generative AI I think it is overused and harmful. And I hate to add but to this sentence, but I use the app Guava and out of curiosity the app offered to generate a list for what to bring up with my pcp, as well as pointed out some patterns I hadn’t noticed with my symptoms , and I actually found it quite useful. The thing is… its AI, and as a creative person myself I really hate generative AI, so now I feel torn because this tool within the app seems useful but it goes against what I stand for morally.

What is your go to way of just getting rid of pain? Im tired of just being in pain, everyone is, but fuck I just want it to stop. I want to be able to just exist without needing opiods or tapes, creams, constant moving just to pop my joints and reset. To sit and not be stopping and standing just to give my sciatica, knees, and whatever joints are hurting a break. To be able to hold my phone without and issue, to not deal with the constant heat and cold intolerance.

This shit sucks yall and Id never wish it upon any one else. Sometimes just sitting in the dr office waiting for lab results and HOPING, PRAYING something is finally wrong, something finally pops up, only to be hit with "everythings normal". My body is deteriorating from the inside out, everything is not "normal".

Another thing is having family around you who dont believe you. My fuckin aunt calls it the "Gumby disease". Like how fuckin fun is that, make fun of a disabled person😭.

Im tired of this shit as medical system.

like i don't want to have to specify every single time I'm upset that I don't want advice. i know that's what I should do and that (most) people are just trying to help, but I'm not thinking about giving a disclaimer when I'm having a flare up and in pain. it comes across as "you just need to do X and you'll be better". even when someone's offering a well informed opinion or sharing what helped with them it still makes my blood boil and then I feel guilty for being upset.

the constant information overload of researching doctors and specialists and things to eat and things to avoid and moving your body and letting yourself rest and getting sunlight and taking vitamins and doing this and doing that i am TIRED!! I am SO TIRED of feeling like i need to research how to fucking survive and not constantly be in pain. and so to be overwhelmed and exhausted with not getting care and not finding treatments that work, only to be told to do several things that I'm already doing or have already tried, is infuriating. sometimes I just want people to say "man that sucks, I'm here if you need to vent".

it also feels really minimizing of my conditions to have people give unsolicited advice/opinions. it feels like they're sick of hearing about it and just want me to be "fixed" already. like shit man I want that too. but it's not happening anytime soon if ever, that's what "chronic" means. and right now i just need to feel seen and heard and validated because it's already hard enough to be dealing with several chronic conditions. feeling unseen and unwanted and unbelieved is just making everything worse and makes me want to give up and stop trying to feel better at all. not to mention i have severe mental health issues and depression that is barely helped by treatment

and this is all compounded by my entire childhood of not being taken seriously medically. I'd get a wellness visit every couple years and other than that I was expected to just be healthy. any issues were attributed to being too lazy or fat (160 pounds). so now as an adult it's been a dramatic life change to do very basic things like daily stretching and drinking water. not to mention how painfully expensive it is to get medical care and buy supplies. how do you go from being neglected and ignoring your health to needing extensive accommodations just to be semi-functional? and having to do everything yourself? (rhetorical) I'm so tired and feel so alone

Hi!

I’m F20, I have migraines without aura 24/7 for 8 yrs and hyper mobility officially diagnosed. I also have heart issues (high heart rates and blood pressures when moving or standing), GI issues (early to be full, bloating, more gas then normal, and diarrhea that’s is pretty constant), along with vertigo and recently fatiguing quite quickly.

I am meeting a possible new PCP tomorrow, as where I live (state) you transfer from children’s to adult by age 21. I’ve held out so long because I love my pediatrician. I’ve never had to fight to prove what’s happening and he is just a funny guy haha. I will stay with him until I’m 21 officially but I need to start scouting for a new PCP now as to have an easier transition from children’s to adult.

My mom recommended the person I’m seeing tomorrow, she is a PA but is able to be a PCP for on paper. My mom had an appointment with her last week and before it I gave her permission to see if the PA was able to take on my case and put out feelers if she knew anyone I could go to.

Immediately my mom explained to the PA a few of my health challenges espically with a cardiologist who tried to say I’m “deconditioned”. From what my mom told me, “the PA gave me a look like I was crazy and yelled ‘she’s 20, there’s no way with her activities.’” I do marching band and winter guard along with going out as daily as possible. My mom also told me that the PA brought up that if I was to go see her she already wants to do a tilt table test for specifically Hyperangerse (I can’t spell) POTS, which is more then any of my doctors, including my PCP. He wanted me to find a dysautonomia specialist in the area as the hospital chain I go to dosent have one.

I’m still very anxious about this appointment because my history is a lot at a glance. I’m mainly looking for a PCP I don’t have to “fight” to get things done, that actually listens and dosent make me feel crazy.

Any advise is appreciated, and I’m so sorry for my spelling errors!

I don't ask for much. I have symptoms of something and found possible matches and it can be potentially serious but treatable. I don't drive at all so I depend on my family. However I feel like my family picks fights with me over the dumbest stuff. I don't feel like I have a family. I don't feel loved or cared for. I am tired of being strong and appeasing them because they are not facing reality. I can feel sick and my mom picks a fight with me because she thinks I'm acting weird or angry and it turns out I am having a low grade fever. That is very odd to me.

I feel depressed because I'm not getting the help I need or accomplish anything because this is all draining.

I'm tired of pressure to please people when nothing is getting done to help me .